We are blog friends, right? I mean, I assume you can handle my sloppy truth without judging me too harshly. Well, this mom won’t pray for a special miracle for her special needs son. There, I said (typed) it. And I want to tell you why.
I sat down to write this specific message to you several times without success. Every time I mustered the energy to log into my writing platform, I just sat and stared at the blank screen. The little cursor blinking patiently in the upper left-hand corner of the glowing display. How can I possibly articulate my feelings around this without dishonoring Someone? Or sending the wrong message? Or even worse – discouraging another hurting soul? And every time I slammed my laptop shut and walked away. A little less confident and a little more discouraged.
I’ll be completely honest, friends. I haven’t published anything since April for a multitude of reasons. The world seems to have swallowed me whole and left little of my creative spark behind. Most days I am focused on what has to get done in the next 24 hours at home and at work while still eeking out a little bit of parenting. My friendships, my marriage and my writing have all taken a back seat. Again. Can anyone else out there relate? Can a tired girl get an “amen”?
A special miracle.
Even deeper than my surface reasons, I have been too afraid to share this with you. What in the world could I possibly have to say to meaningfully encourage another warrior momma walking a similar direction? The issues of parenting a special needs child seem too big, and my words feel too small. I certainly don’t want to sprinkle hollow platitudes or insult anyone else’s story with shallow ideas. The Thankful Bee was created to be a balm. A beacon. A place where we can all exhale for a minute, recharge, and then take another step forward. I am truthfully unsure if I can be that for anyone (or even for myself) at the moment.
Still, I feel compelled to share my journey forward on this particular path. In other words, why this mom won’t pray for a special miracle – complete and immediate healing for her son’s cerebral palsy. My story isn’t clean or tidy. In fact, it is fraught with hard feelings and tough questions. Questions like, “Why does God allow babies to be born with disabilities?” Or, “Why does God grant some people’s petitions for miraculous healing and not others?” Does He favor one person over another? And why, despite my professed strong faith, does this mom not pray for that specific, special miracle?
Let’s question the basics.
Before we delve into the deeper points, let’s answer some foundational questions together. I had to really look long and hard at these to determine whether I was stuck in the muck of a basic tenet or not.
Question #1: Do I genuinely believe God is powerful enough to heal my son?
Answer: Yes, His omnipotence has never been in doubt with me. All I have to do is look back at Luke’s adoption story to see His might. God moved impossible mountains to bring Luke, his birth mom and our family together. Nobody and nothing will ever convince me otherwise. Period. I 100% firmly believe that God is capable of erasing Luke’s cerebral palsy with one breath, one word or one nod.
Question #2: Do I honestly believe that God is good/kind/loving enough to heal my son?
Answer: I soul searched on this question a bit longer than the first one. Probably because of those really tough questions I mentioned earlier. And while this blog post isn’t meant to resolve why bad things happen to good people, I still have to answer “YES”. Yes, I can look back on the five decades of my life and point to specific evidence of God’s loving faithfulness. How His goodness rose up out of the ashes of my own past desperate situations to bring beauty and joy and peace. So, yes, I have to answer that God is good and His love for Luke and our family is rock solid.
[Case in point? Have you read about our sparrow yet? It will always be one of my favorite stories. You can find it HERE.]Let’s really rip it open.
I have examined my heart, and I believe that God is powerful enough. And I believe He is good/kind/loving enough. So, why won’t this mom pray for a special miracle to obliterate her son’s cerebral palsy? Warning, this is where my feelings get extra sloppy. Do I believe that our family is WORTHY of a miracle?
Certainly there are thousands of mothers out there asking God right now to heal their babies of worse things – terminal cancer, pervasive drug addiction, crippling depression, etc. I mean, Luke’s cerebral palsy isn’t a progressive condition, and it isn’t fatal. His muscles are weak and floppy, and his balance and coordination are impaired. He is not yet able to communicate verbally, and he sometimes drools if not prompted to swallow or wipe his mouth. His gross motor, fine motor and expressive speech skills are all impacted, but his intelligence is unaffected. He’s a super smart little cookie trapped in an uncooperative body. He can only improve from here, and he continues to encourage us with his steady progress.
(Side Note Public Service Announcement – Don’t assume that because he isn’t talking that he isn’t taking in every word you say. He also isn’t hearing impaired. So when you ask invasive questions about his special needs or about his adoption story, HE CAN HEAR AND UNDERSTAND YOU. Seriously, I assume you are well intentioned people, but don’t make me punch you. Because I will. Like a protective mama bear with a slightly floppy, drooly, non-verbal cub. )
Moving on…
So, do I not pray for that miracle because I think other families are ahead of us in line at heaven’s “Miracles Answered Here” window? Yep, that’s probably it if I am being completely truthful with myself (and you). We are managing, and Luke is doing well despite his struggles. Feel free to bless someone else with our miracle, Lord. We don’t want to ask for more than we deserve. We want whatever YOU want.
God’s unexpected response.
Anyway, in talking to God about my reasons for not specifically asking Him for a miracle for Luke, He answered me in a very unexpected way with just two words. “SLOW BURN”. Huh? Those weren’t exactly the words I needed. And then it was like the veil was lifted from my eyes and I saw a teeny peek of what God sees. God has already given this mom a special miracle for her boy. Luke’s miracle healing isn’t a quick flash. Instead, it is a SLOW BURN.
Luke’s miracle is the team of talented therapists and teachers who build into him (and me) every week at school. Slow burn.
His miracle is a team of gifted outpatient therapists and other medical specialists who genuinely care enough about him (and me) to patiently listen to my concerns and include me in the decision making. Slow burn.
Our miracle is having two jobs that allow us to accommodate our schedules around Luke’s needs. And some seriously amazing health insurance. And access to resources other families don’t automatically have. Slow burn.
His miracle is the unexpected financial help that has come our way to pay for expensive equipment and services not covered by that awesome insurance. Grants, special funds, and one heck of a financial advocate through our local Children’s Hospital. For example, did you know that a local coffee shop’s baristas covered a portion of Luke’s $7,000 speech generating device by donating all of their customer tips for a full month? Who even does that?! Slow burn.
And Luke’s miracle is a community of friends and family who fiercely love him and support us as his parents. They pray for us, and make us laugh and pick up the slack when we need help. Slow burn.
Your own slow burn.
Where are YOU on this road? Even if you are not raising a child with special needs, I bet there is something in your life for which you’d love a little divine intervention. What is that prayer you leave unspoken? Do you doubt God’s power to grant it? Do you question His goodness around that thing? Or, like me, do you consider your ask unworthy in light of other peoples’ “bigger” problems?
Regardless, my advice to you is to still boldly ask Him. Be that mom and pray for the special miracle. And then look for your own slow burns. God is always listening, and He always answers (“yes”, “no” or “wait”). Sometimes just not in the way we expect.
Until next time, friends!
Melissa
Online resources.
Want to learn more about cerebral palsy? Here are some helpful links.
Cerebral Palsy Foundation https://www.yourcpf.org/
Center For Disease Control and Prevention – Cerebral Palsy https://www.cdc.gov/ncbddd/cp/index.html